Personal Stories

Joanna David

Actress Joanna David is no ordinary patron for just another charity. Unusually for a neurological charity, Joanna is a sufferer herself, under-going decompression surgery for her Arnold Chiari Malformation in 1993.

"I first knew something was wrong when I started getting severe pains in my head, when I was putting pressure on my system, whether that be shouting (I am an actress after all), bending over, or sneezing," explained Joanna, when she met up with Trust Chairman Tony Kember in central London earlier this year to discuss her new role. She added, "It impacted on most parts of my everyday life, including the acting. If I was doing hysterical scenes or shouting, I'd get severe pains in my head, or when we doing company voice exercises."

Like many sufferers, that moment when she was first told that something was wrong, and given a name for it, sticks in her memory.

"When my consultant first told me that it was Arnold Chiari, I thought, 'What did that mean?', 'An operation?', 'Would it work?' and 'How experienced was the surgeon?' Little did I know that he was the best, and just how soon would I be able to work again," she tells the Newsletter. He is Michael Powell, consultant neurosurgeon at the National Hospital for Neurology and Neurosurgery in central London.

It wasn't just Joanna that had to come to terms with the news, but her partner (actor Edward Fox) and their children (actress Emilia Fox, younger brother Freddy, and Lucy - Edward's daughter from his previous marriage).

"My family didn't really realize the seriousness of it all until I was in hospital in intensive care. I was operated on in the June of that year, and got through the six week check-up, but did have severe psychological anxiety and depression afterwards," explains Joanna candidly. "But I had fantastic medical treatment, and was well again by the October."

"If I had any advice for someone newly diagnosed with the condition, it would be that when you see your neurologist and surgeon, ask them everything that is on your mind - and anything that worries you. Don't leave it there to play on your mind."

Even before becoming a Patron for ACT, Joanna had thrown herself into raising funds, most notably for the National Hospital (for an MRI scanner), as well as sharing her own experiences to raise awareness of the condition. "Since the operation, I've tried to support the National Hospital, where I had my treatment. I have trekked to Nepal, for which we raised £ 8,000 in sponsorship. I've also given talks to journalists about the amazing treatment I received. I've also spread the word by speaking at a neurological nurses' convention.”

Despite putting a lot of energy into the cause herself, Joanna is under no illusion that everyone is as lucky. Explaining why she was happy to sign up to support the Trust, Joanna says, "Some of the symptoms can be seriously disconcerting, but the support that fellow sufferers can give who have had unique insights into dealing with the condition is vital. Whilst surgery can be as good as a cure for many, for others it can leave both a physical and psychological legacy. The Ann Conroy Trust helps provide support for those needs and fears. I do tell people that I've had the condition, and that I have recovered 100% - so I suppose I am a good advertisement for the operation."

Her profile has already helped recruit five new members to the Trust, when a new regional group was set up in Norfolk, in June. Press coverage she helped to generate ensured that sufferers at both ends of the county were able to speak to a fellow sufferer for the first time, in one case, in 12 years.

On the professional front, Lancaster born Joanna continues to be in demand on both TV and Radio. "My most recent acting assignments include Bleak House, which is to be shown on TV soon." Bleak House is the ground-breaking adaptation of the Dickens classic on BBC One in the Autumn which will be aired in the style of a modern day soap opera, in twice weekly, half hour episodes. Also in the starstudded cast are names such as Charles Dance, Alistair McGowan, Pauline Collins and Johnny Vegas. "I've just appeared in the ITV drama, Falling, and a radio play too, called Moving Day," adds Joanna, demonstrating that the condition has not prevented her from having a successful acting career.

Joanna, who lives in Little Venice, West London is a very familiar face and voice in the UK, whether on TV (as well as her acting credits which include Rosemary & Thyme, Monarch of the Glen, Heartbeat and as Mrs Gardener alongside her daughter in Pride & Prejudice, the cameras repeatedly focused on Joanna as she chatted with Rowan Atkinson at the wedding of Charles and Camilla, who was sat next to her in St George's Chapel), in films (for example, she played the wife of Peter Baring, the chairman of the bank in Rogue Trader, which starred Ewan MacGregor as Nick Leeson), on the radio (in numerous plays), or narrating audio books.

As a complete Joan Hickson 'Miss Marple' nut, I will always remember Joanna in particular for playing the part of Emma Crackenthorpe in the adaptation of 'The 4:50 From Paddington". It doesn't take a sleuth to work out that Joanna David is going to a high profile advocate for the Ann Conroy Trust, and the neurological conditions it represents.